Founded in 1998, the Amyotrophic Lateral Sclerosis (ALS) Clinic at Johns Hopkins is a globally recognized leader in ALS care, offering the latest in clinical trials and therapies to patients with ALS. We provide comprehensive medical care, support and education to patients and their families, from diagnosis to advanced stages of ALS. Our compassionate team of neuromuscular specialists uses available therapies, equipment, exercise, and nutritional and respiratory support to maximize your health and function.
Our goal is to improve quality of life for patients and caregivers, as well as connect patients with opportunities to participate in basic and clinical research related to treatments, causes and mechanisms behind ALS.
On this page:
Our Team | What to Expect | Appointments & Referrals | Contact | Patient Resources
Request an Appointment
Patients requesting an appointment with the ALS Clinic need to have a confirmed diagnosis by a Johns Hopkins neurologist. We ask patients diagnosed by a physician outside of Johns Hopkins to be evaluated by a Johns Hopkins neurologist.
Patients diagnosed outside of Johns Hopkins:
Patients diagnosed at Johns Hopkins:
ALS Resources at Johns Hopkins
Our Team of ALS Specialists
Nurse Practitioner
Alpa Uchil, M.P.H., M.S.N., C.R.N.P.
Expertise: Amyotrophic Lateral Sclerosis (ALS), Lou Gehrig's Disease, Neurology
ALS Research at Johns Hopkins
Johns Hopkins is one of the global leaders in research on how to stop ALS and prevent and repair its damage. The Robert Packard Center for ALS Research at Johns Hopkins is the only institution of its kind dedicated solely to solving ALS. More than 100 scientists from Johns Hopkins, other universities, government labs and biotech companies work together, sharing insights and materials to understand the biology of ALS and to find cure.
Appointments and Referrals
When you call to schedule an appointment with the ALS Clinic, we may ask you for the following information:
- Contact information (patient’s name, address, and phone numbers)
- Insurance information (copy of the insurance card)
- Relevant medical records, including clinic notes, lab results and/or reports, physical referral letter
You may submit medical records by mail or fax or call our office at 410-955-8511 for instructions on how to submit electronically. We will contact you once our team reviews the information. This process typically takes one week.
Referring physicians
Physicians can follow the same process to refer a patient. Johns Hopkins Access Line (HAL Line): 1-800-765-5447 is available 24/7 for physicians who need to consult a Johns Hopkins physician.
Contact Us
The Johns Hopkins ALS Clinic
Department of Neurology
Johns Hopkins Outpatient Center
Room 5072
601 N. Caroline St., Baltimore, MD 21287
Fax: 410.614.7179
Phone: 410-955-8511